It’s been 11 years since William was diagnosed with Duchenne Muscular Dystrophy, a progressive muscle disorder that causes loss of muscle function and independence. During these years we’ve witnessed advances in research and quality of life. Every year there is more optimism. This year the first drug to treat Duchenne in a small subset of boys was approved, yet there still is no cure and work to do.
Living with Duchenne Muscular Dystrophy does not define William. He’s a happy and active soon to be High School junior and an excellent student. He’s got a long list of interests ranging from computers, hacking electronics, programing, gaming, and exploring the world around him. He’s able to thrive due to an amazing group of family, friends, teachers, aides, specialists, administrators, and doctors. William uses a wheelchair to get around and must rely on help even for many ordinary tasks. Changes often come quickly and bring new challenges. Despite this he meets the challenges with creativity and a mature sense of pragmatism.
Now we need your support
This is the 7th year of Team Run4Will. Every year the team grows larger and we accomplish more. This year we have 9 runners running the 5K and the 10K. We appreciate your generous support.
PPMD is the largest nonprofit organization in the United States focused entirely on Duchenne and has improved the treatment, quality of life, and long-term outlook for all individuals affected by Duchenne through research, advocacy, education, and compassion. We can’t do this without you.